Have a Heart for EB Valentine's Day Weekend
Orlando, Florida

 

 

Have a Heart for EB

From the Have a Heart for EB website

...A trip to Walt Disney World is one place where these children can be children, enjoying the magic of childhood.  For the first time, many will be meeting other children who suffer from EB as they do.  With some help, families come from far away to be able to join others who suffer from this painful and often isolating disorder.

The Family Matching Program: Considering the price of bandages alone can surpass $50,000 a year, for many families the cost of a trip to Walt Disney World is prohibitive. It is our hope that everyone will be able to find a way.  In light of this, we will be matching benefactors to families in need.  For some families, help with airfare may be needed.  For others, assistance with the hotel expense is all they need in order to afford this dream. 

If you would like to financially assist a family to enable them to make this dream come true, just contact us.  We will match your gift to a family or person who is presently unable to attend.  It is our hope to serve those who have never attended before, so that they do not have to use their one and only 'Make A Wish' on this event.

Donate Your Air Miles: If you have extra air miles, you can pass them on to someone in need.

Specific Items: Specific items are needed to place in goodie bags.  These bags will be delivered upon arrival Thursday night.  The purpose of this gift is to welcome families by providing some basic food items and special goodies.

Your Time: If you would like to lend a helping hand your help would be greatly welcomed.  Extra hands are needed for assembling the goodies bags, helping with registration, and assisting with acquiring wheelchairs.

Financial Donations: Financial contributions are always welcome.  All contributions will go towards making this special weekend possible.